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  3. (1) He’s only 11 months old, but Charlie Gard commands an army of the impass

(1) He’s only 11 months old, but Charlie Gard commands an army of the impass

游客2024-08-23  8
问题     (1) He’s only 11 months old, but Charlie Gard commands an army of the impassioned that numbers in the hundreds of thousands and includes a Pope and a President. This online platoon, including 350000 people who have signed a petition on his behalf, is rallying behind his parents’ singular mission—for Charlie to stay alive. A far smaller but equally committed group, including a hospital and a court, is fighting back, defending the medical community’s right to decide when enough treatment is enough and to allow the baby to die with dignity and in peace. It’s a moral argument with a challenging perception problem, as doctors are aligning to essentially stop the care they are committed to provide. And no matter what happens to Charlie, the questions raised by his case will endure.
    (2) Charlie was born last August with a rare mitochondrial depletion syndrome (先天性线粒体缺失综合征) that renders his cells unable to pull energy from his body. The disorder has left parts of his brain so damaged that he can’t breathe on his own or hear. For the majority of his short life, he has lived in the neonatal intensive-care unit at Great Ormond Street Hospital in London, relying on machines to breathe for him. He can’t move his arms and legs and suffers from seizures that require medications to control. This spring, the hospital determined that nothing more could be done to help him and that his life of tubes and monitors doesn’t have the quality a human deserves. Removing him from life support would be, in its opinion, the most humane option for him.
    (3) His parents Connie Yates and Chris Gard disagree. While they recognize their son’s medically precarious state, they have staked their hope on an experimental therapy that has never before been tested on humans with Charlie’s condition. If there is a chance that Charlie could get better, even if he doesn’t recover completely, then they should have the right to take it, they say. "He’s our son. We feel it should be our right to decide to give him a chance at life, " Yates said to British broadcasters. "We don’t know until we try. He’s still fighting, and we’re still fighting." So why would a hospital take a moral stand against treatment and against parents’ wishes?
    (4) Doctors aren’t obligated to provide treatment that they feel is inhumane or ineffective. Before recommending that Charlie be taken off of life support, his doctors considered the experimental therapy but concluded that his brain had been so damaged that he wasn’t likely to improve if he received it. "Doctors in this case could have said, ’He’s going to suffer, and it’s going to be really unpleasant and painful for him, but what the hell, it’s not our problem, f" says Jonathan Moreno, a professor of medical ethics at the University of Pennsylvania, about acceding to the parents’ wishes. "Would we want our doctors to think that way and wash their hands of that obligation? I don’t think so."
    (5) Parents apply a very different emotional calculus to the notion of futility, says Dr. Margaret Moon, a pediatrician (儿科医生) from the Johns Hopkins Berman Institute of Bioethics. For some, there is no such thing as futile medical care, given that their only priority is keeping their child alive. That’s the position the parents of Baby K took when they insisted on continued life support for their daughter, who was born with only a partial brain and had trouble breathing on her own. For others, like Charlie’s parents, the threshold of futility is reached only when they have exhausted every possible treatment option, however uncertain the outcome.
    (6) In the U.S., such conflicts are generally resolved in favor of the parents. When doctors don’t feel medically and ethically able to continue futile treatment for a child, they offer parents the opportunity to find other hospitals that would. "In the U.S. we have created a culture where everybody should get whatever health care they want, " says David Magnus, director of the Center for Biomedical Ethics at Stanford University. "As long as neither neglect nor abuse is involved, we give parents tremendous latitude in making decisions for their children."
    (7) That’s not the case in the U. K., in large part because of the country’s single-payer national health system. It’s more routine for the medical community, and the courts, to make decisions about what’s acceptable care, what’s excessive care and even, as in Charlie’s case, when care should stop. (本文选自 Time) [br] Why is it Charlie’s doctors instead of his parents that have the final say on his treatment?
选项 A、Because the health care he enjoys is provided by a single-payer national health system.
B、Because his parents admit neglecting him on occasion.
C、Because his treatment relies on doctors’ professional judgment.
D、Because it is in Charlie’s best interests.
答案 A
解析 推断题。原文第六段指出，在美国，当医生与家长就无效治疗产生冲突时，解决方案通常都偏向家长，只要不涉及疏于照顾和虐待，美国的家长往往被给予充分的自由为其孩子做出决定。第七段第一句则提到在英国的情况并非如此，即在英国，无效治疗的决定权由医学界和法院掌握，该句的后半句解释了原因，很大程度上是因为该国实施的是国家作为唯一支付主体的国民医疗服务体系。该段第二句则以查理为例具体说明英国医生对病人治疗方法的决定权，故A为答案。第六段最后一句虽然提到了疏于照顾，但这是指美国家长只要不涉及疏于照顾和虐待就能为其孩子做出治疗的决定，并且原文没有提及查理的家长承认了偶尔会疏于照顾他，故排除B；原文未提及C“因为查理的治疗依赖于医生的专业判断”和D“因为这是对查理最有利的”，故排除。
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